You know those moments where it’s one thing after another, & it’s often the stupidest, most easily avoidable things? That’s me lately. In fact, I keep visualizing that fairground stall with the things that pop up out the hole & you must try to shoot them before they sink back into the hole again. Except, this is real life. “Shooting it” is messy, the prize isn’t an adult size stuffy teddy bear, & most likely you find yourself saying: “I think I’m done, get me off this ride now.”
On Tuesday I did the stupidest thing. I put my glasses down, which slipped without me realizing from where I had put them &… I sat on them. My dad asked me if they broke because of the size of my bum, I told him no, it was because I have buns of steel. I wish my butt was made from steel, but let’s not go there.
You see, I didn’t just break my glasses. I broke my life line. I rarely talk about my hearing, but Tuesday I was confronted with quite a serious issue. I can’t hear, & now I can’t see. My sight isn’t the best, the shocked faces of those who try my glasses on tell me that. You know, just in case eyeballing my laptop keyboard didn’t give me that message. But even still, because of my hearing loss my sight has become my dominant sense. Go figure, our bodies are crazy cool. My level of dependency on my sight is insane… & without it, I don’t just struggle to see, I can’t hear.
I read an amazing quote recently from a lipreading person & I thought it was so perfect:
“There is a misconception that lipreading is just like reading a book. You look at the mouth & read. But no, it’s far, far more complicated than that. I have to queue up words in my mind, invent possibilities that fit the facial expression, body language, approximate number of syllables etc etc. Sometimes there are a couple of possibilities, & I hold both in my mind simultaneously, waiting for it to become clear. While I’m doing this, collecting possibilities & sifting through them all, I need to keep the conversation going. So I smile, nod, & say “mmm” & “yep…” as appropriate. If I don’t do that, the speaker stops, & we haven’t gotten anywhere. Sometimes though I get right to the end, & I realize that none of the possibilities work. The whole thing just doesn’t make sense. & then I have to say, “Sorry, can you go right back to the start?” & you might wonder, well why were you nodding & smiling & saying yes all along when I didn’t understand. But that’s because it’s how lipreading works. It’s not a lie. It’s the only practical way to do it. It can take a whole minute or two after the speaker finished, that it suddenly comes to me what was said. As you can imagine, this is incredibly hard work. I have an hour of lipreading in me a day, tops. After that, fatigue sets in. And if I go too far, pushing myself for maybe 3 hours, I am WIPED afterwards, & my head pounds. It can literally take me days to recover. This is way I prefer other methods of conversation….”
I WISH I wrote this. This quote is 1000000% accurate. My mum can tell you horror stories of how frustrated I would be after school each day. As an adult, the many “side effects” still exist; like how more days than not I struggle with headaches & feel overly stimulated. But every single day I fight my hearing loss & refuse to bow down to this disability. My ability to cope is a rock. But it’s a rock that’s balancing on a very fragile system of “everything must go correctly in the universe.” Take away my glasses, my rock suddenly free falls.
Ironically yesterday God talked to me a lot about His Provision. How He is strong like denim & tenderly compassionate like lace; & how He goes ahead of us to make a path possible or to soften a heart. So, when the butt snapping glasses incident happened I had a deep sense of peace. It didn’t take away the freak out & the tears but the first thing I did was point out to God who He just said He was, & that I really needed Him to show up because I was massively screwed.
What followed next was: (1) I found an old pair of glasses that are old, awful on the prescription & give me a monster headache but it’s better than nothing; (2) I went to life group later that evening & they immediately spoke encouragement over me when I told them what happened; (3) their offer to help practically was also immediate; (4) a friend from the life group arranged for me to see an optician yesterday; (5) the optician ever so graciously gave me a discounted rate for the test eye & offered to get me free trial contacts to tie me over until I get back to the UK; (6)…
You see 1-5 can be examples of the Almighty Strong Denim God. God the go getter, fighting for us, lining everything up: friends, support, practical help… But point 6 was my highlight.
My friend who organized the appointment with the optician wanted to pay the bill. He’s the kind of guy who is so quick to extravagantly bless people where finances are involved, & normally he won’t take no for an answer. This time around however, when I said no to his offer, he accepted it. It was only later as I reflected that I realized something. I don’t know why he accepted it. Was he strapped for cash? Or did he have discernment & understand the importance of letting me pay? Either way, his actions of lining up an appointment for me & allowing me to pay for myself gave me an incredible sense control in a horrible situation. Not control like pride, but control in the way of a real sense of dignity & empowerment.
You see, as humans we are all trying to reach for the same key things right? Ability being central. Ability to work, be in community, live life to the fullest… Being “disabled” is “simply” a matter of trying to reach for the same things as an able person but having to make significant adaptations to get there. We are a strong group of people; & now that I think about it, that makes us quite powerful I guess. We fight for our quality of life every single second of every single day. Most of us do it “behind the scenes”, taking ownership of our disability & the fight for quality privately on our own shoulders. We so often “just get on with it.”. We fight simply, & for no other reason than because we have a deep desire inbuilt into our human DNA, just like an able person, for connection & intimacy.
Every day we face separation, isolation & exclusion in every area of our lives. And maybe that’s why it’s so powerful when someone comes along side us individually & communicates: I see you. Remember what I once quoted? “Intimacy: Into Me You See.” So yes, whilst we can fight & do what we need to do, we also understand how precious being connected is. I don’t know if I can describe what it does to our souls. There is LIFE. You bring someone life, real tangible life when you communicate they are seen & not alone. It’s easy to do the obvious surface level seeing but the deeper seeing is a whole different ball game. It can be a friend reminding another friend to not cover their mouth with their hand when they speak to me, or it can be the honor of a wish to let me pay the bill.
This is the tender compassion of God. Lace. I, the LORD your GOD will provide for ALL your needs. Both Denim & Lace. He meets us in the practical, & He meets us in the heart stuff. He doesn’t just care, He sees. Me, Akila Knight, a speck on planet earth, who is currently trying to ass crunch her way through life is Seen.
PCOS is not a new concept to me. In 2007 I was struggling with my health and I had a laparoscopy operation where they went through my belly button to investigate. The doctor later told me I was borderline, some doctors would say I had PCOS and others wouldn’t. In his opinion I didn’t have PSCO.
However I was apparently borderline and so when things seemed to be getting serious with my last boyfriend I told him. I just explained what had happened, what the condition was and that maybe there might be difficulty getting pregnant. He couldn’t handle it. More than once in the months to follow he said, “Akila did you do something to cause this? You must have done something.”
The possibility of having PCOS was one of the reasons why our relationship came to an end. So you can forgive me for being so afraid of rejection now that it’s been confirmed I do have PCOS. Why in my last blog I said, “I can’t envision a guy having that faith. Am I belittling people’s faith – no, not at all. What I’m saying is I don’t think a guy will have faith in me. I can’t imagine being good enough just as I am for someone else. I can’t imagine a guy would pick me…”
But God is incredibly faithful. I didn’t tell anyone back home that I was going to the hospital last month; and the very day after my hospital appointment my sister told me she received a message from my pastor.
“Laura was just thinking about your Akila and then Genesis 8:11 popped into my head ad I just wanted to pass it on to her. A seemingly random verse but wondered if it is specific to her situation this week. But I don’t have her number on this phone or whatsapp?! Could you please forward this message please? ‘He waited 7 more days and sent out the dove again. It came back in the evening with a freshly picked olive leaf in its beak. Noah knew that the flood was about to be finished.’”
I was so surprised. And yet not at all. Surprised my pastor sent this message to me but not surprised that God was speaking. Speaking hope, peace and truth back into my life. I suppose like Noah I felt a little trapped, scared, uncertain of the future, and no way to really know my fate. Noah looked out and only saw water, I looked out and only saw aloneness. Noah sent the dove out to get confirmation of his being able to return to land; God sent me an olive leaf confirmation that He is faithful and He hasn’t abandoned me.
My church life group here in South Africa have been amazing. God’s really used them to bring community and belonging into my life again.
Side note: for the first time in my life I find myself feeling so free to be me. I don’t feel inadequate in their spirituality, I don’t feel I need to prove anything, I just feel embraced and included. It helps that some of them seemingly have very high emotional intelligence levels haha. But because they give me so much freedom to be myself I find that I just want to keep giving back to them. At the moment it seems to involve a lot of food haha. Two girls moved recently and there were plenty of guys to help them physically move their belongings, I just bought the cinnamon rolls and chocolate croissants to keep them all fed and happy haha.
Side Note 2.0: I miss my parent’s house so much. I miss the big kitchen and the big living room to have people over. I miss people coming over for a cup of tea, or for dinner or just to hang out. But because my friends in my life group bring out a desire in me to invest in them I’m looking for ways to make things happen in the context I’m in. This week I’m attempting my first dinner party in my teeny tiny flat haha.
But back on topic. The depth of community and belonging is going deeper than what most of them probably realize. For example there is a guy in my life group that is really helping me navigate through some of the health things. I don’t think he really knows about my health, or that he’s helping me, but he is.
Back in August he was in a bike accident where a lady in a car turned right and cut him off. He was in hospital for a couple weeks and the doctor had to remove 3 toes on his right foot because they were too damaged. His attitude though is really amazing. I keep thinking if someone did that to me I’d be so pissed off. But he’s really trying to lay it down and give it all to Jesus.
Our health situations are very different but his continual laying it down and walking in grace helps me to think about my situation and how I can do that. He seems pretty unburdened by the accident, and that encourages me to keep working on getting to a place where I too can just be free and unafraid.
I just find it so special when God uses our friends to help us in deep ways without them realizing it. It inspires me to keep striving to be available to God to help others like that also. And to believe I too can be a candle in people’s lives even if I can’t always see it. But mostly I’m just really grateful God is using this amazing group of people to redeem past words, past rejections and past dreams that have been buried out of fear. I hope one day they each really understand what they did for me.
“This is the account of the heavens and the earth when they were created, when the Lord God made the earth and the heavens. Now no shrub had yet appeared on the earth and no plant had yet sprung up, for the Lord God had not sent rain on the earth and there was no one to work the ground, but streams came up from the earth and watered the whole surface of the ground. Then the Lord God formed a man from the dust of the ground and breathed into his nostrils the breath of life, and the man became a living being.” Genesis 2:4-7